Think Like an Expert About Ichthyosis

Description

The session titled "Think Like an Expert About Ichthyosis" emphasizes the importance of patient advocacy and education for individuals affected by ichthyosis. The speakers, all part of the FIRST (Foundation for Ichthyosis and Related Skin Types) Medical and Scientific Advisory Board, are committed volunteers passionate about improving patient care. They previously held private discussions during annual meetings but have decided to open the dialogue to a broader audience, encouraging participation and fostering comfort among healthcare providers treating ichthyosis. The FIRST website is highlighted as an essential resource for patients, families, and healthcare professionals, offering valuable information on newborn skin care and educational materials about various ichthyosis types. The session aims to be interactive, inviting audience engagement and feedback on discussed cases, promoting collaboration in addressing challenges related to ichthyosis.