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  • Presentation

The Power and Promise of Patient Reported Outcomes

Description

Bob Swarlick discusses the integration of patient-reported outcomes (PROs) into clinical practice, emphasizing their importance in measuring the patient illness experience and treatment effectiveness. He argues that current clinical workflows are primarily designed for billing rather than quality of care, highlighting the need for a paradigm shift towards co-production models in healthcare. This involves engaging patients more actively in reporting their health data outside of clinical encounters, which can enhance the overall quality and effectiveness of care. Swarlick presents data from Emory, demonstrating the effective deployment of electronic questionnaires for capturing patients' experiences and outcomes in dermatology. He points out that while clinician assessments focus on objective findings, PROs can capture a broader spectrum of the patient experience that might otherwise go undetected. The success of these initiatives, he argues, relies on changing the way data is captured and used, ultimately aiming to improve patient care and operational efficiency in healthcare settings. Furthermore, he notes that using electronic health record (EHR) data to measure clinical outcomes is crucial for sustainable healthcare growth and enhancing patient engagement.

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Conclusions

  • Robust data capture is critical for measuring clinical outcomes in dermatology.
  • Automated data collection tools can enhance clinical practice and improve patient care.
  • Integrating patient-reported outcomes (PROs) into clinical workflows captures a broader spectrum of patient experiences.
  • Co-production models allow patients to contribute vital information, improving efficiency and care quality.
  • Enhancing data standards and workflows is necessary to maximize the utility of electronic health records (EHR).
  • Current clinical workflows are primarily focused on volume rather than quality, necessitating a shift in focus.
  • Patient engagement is essential for effective data collection and improved clinical decision-making.
  • Collecting outcomes data outside of clinical encounters can alleviate pressure on healthcare providers' time.
  • The potential for post-marketing evaluations of treatments can be explored through meaningful data capture in registries.
  • Jones, D. S., Podolsky, S. H., & Greene, J. A. (2012). The Burden of Disease and the Changing Task of Medicine. *The New England Journal of Medicine*, 366(24), 2321-2326. DOI:10.1056/NEJMp1210507
  • Batalden, M., Batalden, P., Margolis, P., Seid, M., Armstrong, G., Opipari-Arrigan, L., & Hartung, H. (2016). Coproduction of healthcare service. *BMJ Quality & Safety*, 25(2), 163-165. DOI:10.1136/bmjqs-2015-004315
  • He, X., & Lu, Q. (2023). The Changing Tasks of Medicine and Dermatology in the Twenty-First Century: The Need for Improved Information Capture Tools and Processes. *Dermatology and Therapy*, 13, 2479-2486. DOI:10.1007/s13555-023-00886-0
  • Snyder, C. F., et al. (2023). Patient reported outcomes in dermatology: a review. *PubMed*. Retrieved from https://www.ncbi.nlm.nih.gov/pubmed/36723756