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  • Presentation

Limited English Proficiency and Social Determinants in Diagnosing Stevens-Johnson Syndrome

Description

A dermatologist from Harborview presented a case of a 32-year-old Russian-speaking woman transferred for suspected Stevens-Johnson syndrome/toxic epidermal necrolysis after developing widespread erythema, bullae, mucosal involvement, and progressive skin detachment. Early history suggested she was not taking medications, but communication barriers and lack of an in-person interpreter delayed accurate medication reconciliation. Once an in-person Russian interpreter and her sister were involved, the team learned she had been using several medications from her medicine cabinet, including Bactrim and other non-U.S. medications, with Bactrim suspected as the likely trigger. The speaker used the case to highlight how limited English proficiency can worsen patient understanding, satisfaction, access, and outcomes, and noted that interpreter services are often not covered by insurers. She also discussed broader disparities in dermatology care for patients with limited English proficiency and emphasized cultural humility, better interpreter access, and innovative support systems like community house-call nurses. The patient ultimately recovered and was doing well after a prolonged hospitalization.

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Conclusions

  • Limited English proficiency can substantially hinder dermatologic care by reducing patient comprehension, satisfaction, and perceived support while increasing delays, costs, and missed information.
  • Language-concordant care appears to improve clinical outcomes, as shown by better glycemic control in patients who receive care in their preferred language.
  • Dermatology disparities for LEP patients are real and measurable, including lower access to effective acne therapies and delays in starting isotretinoin.
  • Interpreter services are necessary but not sufficient, because they do not fully eliminate communication barriers and are often not covered by insurers.
  • In-person interpretation and culturally humble questioning can uncover critical medication histories that standard interviews miss, especially when patients use non-U.S. or over-the-counter medications.
  • A patient with severe SJS/TEN-like disease was ultimately found to have taken medications from her home medicine cabinet, including non-U.S. products, underscoring the need to ask about all remedies patients use when they feel unwell.
  • Health systems should expand beyond interpreters alone by using community house calls, multilingual resources, and programs like EthnoMed to better serve diverse patients.
  • Medication access and patient behavior are shaped by affordability, immigration background, and family learning, so clinicians should consider cross-border and culturally transmitted medication use in their assessments.
  • Cultural humility is essential for diagnosing and treating patients with complex social and language barriers.
  • Improving dermatologic equity will require structural investment in language services and broader social-determinants-of-health interventions, not just individual clinician effort.
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