DataDerm: The First Decade & Goals for the Next

Marta Van Beek begins by introducing the purpose of the DataDerm session, highlighting the significance of the dermatology registry over the past decade. DataDerm was established to address the need for quality reporting in dermatology, especially in a landscape where dermatological conditions were often viewed as cosmetic. Launched in 2016, it has amassed a significant database, capturing over 58 million patient visits and 14 million unique patients across more than 1,600 practices. The registry's approach involves automatic data extraction from Electronic Health Records (EHRs) to alleviate the burden of manual data entry, which was a concern among busy dermatologists. The presentation outlines the evolution of DataDerm, including collaborations with data intermediaries like OM1 to enhance data accessibility and quality. As it stands, the registry not only reports quality measures but also provides insights into patient demographics and treatment outcomes, paving the way for improved care and a better understanding of rare dermatological diseases. Looking towards the future, DataDerm aims to integrate augmented intelligence and machine learning, ensuring that clinicians maintain interpretative guidance in utilizing these advanced technological developments. Van Beek emphasizes the registry's role as a valuable resource for dermatologists, encouraging participation and engagement as it embarks on its next phase with a new partnership with PA Consulting.