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  • Presentation

AAD Project Expands HS Education, Registry Insights, and QI Initiatives

Description

The presentation describes an Academy-led, multi-departmental project supported by Novartis and informed by clinical registry analytics from OM1 to expand education and improve care for hidradenitis suppurativa (HS). It highlights phase two efforts focused on increasing clinician competence and confidence in HS treatment options, using findings from the data analyses to create a broad range of educational resources for members and patients. The speaker emphasizes that the initiative is broader than Dataderm alone, involving education, registry, marketing, communications, IT, and project management, and notes ongoing and upcoming content such as e-posters, Summer Innovation Academy sessions, clinical community discussions, podcasts, question-of-the-week items, on-demand courses, and patient-facing updates. The project has already generated substantial engagement, with thousands of views and hundreds of unique learners, and will also inform upcoming HS guidelines. Phase three will launch a comprehensive quality improvement initiative led by a PhD-level QI consultant and expert panel, centered on Plan-Do-Study-Act methods, peer learning, and practical improvement in diagnosis and treatment across selected participating practices.

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Conclusions

  • The project suggests that combining real-world registry data with AI can improve recognition and diagnosis of hidradenitis suppurativa, especially by identifying undiagnosed patients through broader clinical signals.
  • The findings appear to show that HS presents through a wider and less classic set of patterns than traditionally recognized, including pain, inflammation, acne, cellulitis, dermatitis, and mental health comorbidities.
  • The initiative indicates that AI-derived patient finder results can be translated into practical clinician education that increases confidence in HS treatment options such as biologics and combination therapies.
  • The presentation concludes that a multi-channel educational strategy is effective, since clinical community posts, podcasts, on-demand courses, and conferences generated substantial engagement and learner reach.
  • The work implies that patient-facing educational materials also need updating because registry and AI findings can inform more accurate public information about HS and related boil-like conditions.
  • The final phase of the project suggests that quality improvement coaching and peer-to-peer learning can turn analytic findings into actionable practice changes across participating dermatology sites.
  • Overall, the research seems to conclude that AI is most valuable when paired with expert review, education, and QI implementation rather than used as a standalone diagnostic tool.
  • P281 Identifying Hidradenitis Suppurativa Using AI and Real-World Registry Data
  • Identifying Signals for Undiagnosed Hidradenitis Suppurativa Using AI and Real-World Registry Data
  • Phenotyping Hidradenitis Suppurativa (HS): Findings of a Collaborative Artificial Intelligence (AI) Initiative
  • L071. Advancing HS Diagnosis with Artificial Intelligence: A Multi-Phased Collaborative Approach